Fine Arts and Design
Every person matters. Strong through diversity. Different? Unique!
Anja
Founder of:
kreativstattmuskelprotz
Website: Vandyra Design
Country: Germany
Disease: CMT Typ 1B
Blog:
Gefühlschaos - Leben mit HMSN (Blog: german language)
Anja is a passionate designer and artist from northern Germany. With great attention to detail, she creates unique animal and nature motifs that captivate through hidden intricacies and creative depth. Her art reflects her joy in creating and her distinctive perspective on the world.
In addition to her creative work, Anja also shares personal insights on her blog about living with the nerve and muscle disorder HMSN, aiming to inspire and encourage others with her story.
Sabine Pitschula Brauer
Website/Blog: artofbini
Country: Germany
Disease: Myasthenie Gravis
My work for myasthenia patients:
Podcast
App
My personal project:
intermittent fasting
Sabine, 58, was a lawyer specializing in child protection in her first professional life, and later became an occupational therapist and art therapist. She lives in Kiel and loves the Baltic Sea.
She was torn from an active life: the news that a tumor was located between her heart, lung, and numerous nerves and blood vessels came as a shock. Waking up from anesthesia partially paralyzed was a traumatic experience.
This was followed by an odyssey until the diagnosis of the muscle disease myasthenia gravis, and then another journey until she received helpful support and therapy.
Fortunately, art had been her secret love since childhood and—together with sports—the common thread that formed the basis of her resilience.
She is committed as an activist for patients’ rights, against medical gaslighting, and for self-management and empowerment of fellow patients.
A podcast, media projects, and the teaching of relaxation and valuable movement methods in an app for patients are all part of her work.
Complementary medicine and the free choice of patients are more important to her than repeating standard phrases.
Self-management is a resource she gladly shares with others, as it is the only way to bridge the gaps in the healthcare system and remain emotionally stable when society still excludes and inclusion is still in its infancy.
Encouraging art and heartfelt books can be found on her homepage.
